Wednesday, April 12, 2017

Wednesday, April 12, 2017 1 Week Post Transplant

So here's the deal.... It has been a week now so Gage has his first biopsy today.  It is scheduled for 1:00 pm.   The transplant team has changed the steroid protocol.  IF (big IF) his first biopsy is a 1A or 0, then he is only on prednisone for 10 days.  IF it is a 1B or higher then he is on prednisone for 3 months!  Remember the prednisone brings with it 3-4 other meds that are taken due to the side effects.  This is a big deal! Prednisone brings the big steroid moon cheeks, attitude swings, mouth fungus, and all the other unfun stuff that comes with steroids.  So, we are REALLY wanting a 1A today.  However, the doctors have started some of his immunosuppressive drugs a little later due to his kidneys needing to recover.  They warned us that there may be some mild rejection for his biopsy due to him not having the full coverage that most patients have.  Results won't be in until tomorrow.  So here's to a 1A or better!

He had a good night, but is a little tired this morning.  I'm not sure how good he really slept.  He is not allowed to eat or drink anything until his biopsy at 1:00 PM today.  It is probably good that he is sleeping so he won't get grumpy.

Jason will most likely return home to Oregon today to finish out the tax season as the "pressure" is building.

If all goes well with Gage's biopsy, there is a good chance he can go up to the 3rd floor tomorrow. His blood pressure continues to not be as stable as they would like it.  They are adding some more blood pressure meds after his biopsy and will see where that goes.

All-in-all, he is almost his normal self and continues to improve each day.  Yesterday, our child life specialist brought him a Wii.  It was a great motivator to keep him up in a chair and going for walks.  He could only play while sitting up in a chair.  He watched a movie with Hunter and was laughing and giggling through it.  Definitely on the up swing.

Below we have a little activity for you....

So here's the puzzle...

Can you arrange these chest x-rays in order chronologically?
Picture A 

Picture B
 Picture C



Picture D

20 comments:

Julie said...

Is it D - C - A - B?

And, here's to a !A or better today...

Shanel said...

Very rare is it for a prayer to be said inn primary that does not include Gage. That has not changed. :)
DCAB?

Shanel said...

*in

Linda D said...

D has to be the new heart. Praying for 1A

Unknown said...

From oldest to newest B C A D? Glad he's doing well!

NurseTeacher said...

C, B, A, D? Here's to a 1A! Praying....

Anonymous said...

Am praying for 1A or better. Will be anxious for the good report tomorrow.

Anonymous said...

I'm going with B-C-A-D....

Janelle said...

b-a-C-D

Praying for a 1A for Gage.

Anonymous said...

BCAD
A is definitely with the heartware and Do definitely looks like the new heart. C I can see some wires, so I am guessing that is either the pacemaker or internal defibrillator.

The Reading Nook said...

I hope Gage gets 1A or better! :)

Kent and Reine said...

You are looking good, Gage, also known as the Man of Steel. You are an awesome young man.

Taryn said...

I'm going to also say BCAD. He looks great and here's hoping for a 1A. For one week post transplant he looks fantastic. Glad he and Hunter got some time together today just to be themselves.
Stacy,
I don't know how you are doing, but you look great. I know this is rough, but you know it does get better. All my love

Unknown said...

I'm with D as the new heart, too! I've been on steroids for two years now to slow down liver cirrhosis so I feel ya about that one! So glad Gage is on the upswing!

Anonymous said...

1A 1A,1A,1A!!!!!@!......from High Valley.

Karen W said...

What a difference a week makes!!! Praying for a 1A. Keep fighting strong Man of Steel. Get some rest when you can Binghams.

Anonymous said...

Thinking of your family & donor family! Read an article about an 11yo boy from Ann Arbor, MI who was on life support for 3 weeks due to a very sad situation. His family decided to let him go on Apr 4. Makes me wonder if Tysen's family let him live on as a donor and any chance Gage received his heart. Glad for the positive updates on Gage. I have an 8yo girl with minor heart issues. I can't imagine going thru what your family has endured! Keep looking to the Lord for your strength! He will carry you thru!

Anonymous said...

As I read your posts I'm thinking and praying heavy for your little man Gage! I would like to share that when I was 7 I had my first kidney biopsy bleeding way to much almost not survived.. I had a disease called nephritis.. lived my younger years in hospitals and on meds... at age of 11 I had second biopsy with being put on the prednisone my young body swelled up to 39 inch waist , chubby cheeks and lost all my hair also left horrible scars on my legs from swelling . By the time I was 12 I was off all meds and am now functioning normal life.. I am sharing my story because I feel it always helped me hear from others you might relate in some way... for me I love seeing this little Gage how strong and beautiful he is and how brave he is! Please give him a hug from me! Thanks

Tara and Josh said...

BCAD.1A.
4.18.2017!!

Anonymous said...

DACB Hoping for a 1A or better.