Tuesday Morning April 11, 2017

Gage slept well last night.  He was awake and watching Ratatouille when we arrived at the hospital.  He was even hungry and wanting pancakes and sausage.  He took his many pills like a champ, all at once.   I couldn't believe it, some of them are "horse pills." His potassium has been low, so they gave him a big oral dose through his NG tube.  Unfortunately, the nausea set in and lasted for a couple hours.  By the time his tray came, he was too nauseous to eat.

In rounds the doctors discussed moving his IV meds to oral.  Continue working on his blood pressure.  The goal is to get him on oral forms of blood pressure meds and off any IV forms  so they can remove his last 2 lines hanging on him.  They started his immunosuppressive meds oral and he will have his first biopsy tomorrow at 1 PM.  IF all goes well today, he could possibly recover in his room on 3 West tomorrow.  The ICU wanted to monitor him for another 24 hours.  I'm good with all of that.

He is definitely progressing in the right direction.  If he continues the way he has been going the last few days, he could be discharged within a week.

Jason is looking at a good time to head back and trying to finish up tax season.  The stress is mounting a "little".  It is really hard to figure that out.  Last night, Hunter had a baseball game.  I was able to stay at the hospital with Gage and take him on his 3rd walk and Jason went to support Hunter at his game.  It has been really nice having Jason here, but I know I have enough support here that he can return and we will be fine.  Gage has turned the corner and is moving forward.

We are so truly blessed and are humbled by the out pouring of support and love.  Our thoughts are with the donor family at this time.  We will prepare to write our letter to them to thank them for their priceless gift, and hope that through that letter, they can find some form of peace.

He felt well enough this afternoon, to start working on school work and play the WII.