Monday, April 10, 2017

Monday Evening

Good evening.  Back to school and work for most of us. Gage had a good day except he slept most of it (which means he could be up for much of the night).  We did drag him on 3 walks today.  Each walk was a bit further.  The last walk was around 8:50 pm and was 2 full laps around the 2nd floor.  All good!!  His weight is down quite a bit, he has lost 7 pounds since the transplant.  This is the very reason they try to flesh him up before transplant.  As he gets stronger and eats a bit, it will come back, but 7 pounds is quite a bit for this little guy.

Regardless of Gage's wishes, Stacy did wash hair this morning.  They use this pasty stuff for the EEG leads, so his hair was kinda gross.

This evening Hunter had a baseball game.  I went to support him as Stacy and the girls stayed here with Mr Aurelius and visited with some fun visitors.

When I get the chance, I want to have one of the doctors pull up and compare x rays of Gage's chest pre-transplant on the HeartWare, most transplant with the chest tubes, and what it looks like now. Should be really interesting.  I will share those pictures once this happens.

Heard some pretty rough stories of families around here.  We are still filling blessed to still have all 5 children with us.  Some families we know are not that fortunate.

That's it for now. I will let the pictures do the rest of the talking.
 Thank goodness we cut his hair pre transplant.


Still not feeling like himself.


 His friend Ben from school came by for a visit. 
 Missing Megan in the Sobrato Room.  
Hunter playing a little catcher in tonight's game.

3 comments:

Anonymous said...

So glad to see the Man of Steel up and moving. And equally as glad his friend Ben got to visit! We all get by with a little help from our friends! His family is a fantastic support to keep him motivated too! Thanking Jesus for his extraordinary parents and what an inspiration you all are to me! Prayers continue from High Valley.

Linda D said...

Unbelievable how his little body bounces back. Praise God

The Reading Nook said...

I'm glad that Gage is up and moving! So happy to see his reaction to his friend's visit!