Post transplant Day 12

Our reports are getting more and more boring these days.  All good things.  His medication levels are right where they want them.  His blood pressures are more and more stable as he is completely off steroids.  He will have biopsy Wednesday. with the 12 hour IVIG infusion to follow.  If all continues to go well, he can be discharged on Thursday to the RMH.  This would be wonderful.  Today he went to the hospital school for the morning and afternoon session.  He wasn't his bright happy self due to being so tired.  Soon.

Our goals in the next few days are: 1. Get the "wound vac" off.  That should come off tomorrow, which will be wonderful as it has made him very itchy.  2. Have a good biopsy on Wednesday.  3. Try to get some more sleep.  With him drinking a lot during the day and keeping his feeds as high as they were before transplant, running at night, he is peeing a lot.  Add diuretics on top of that and the poor boy isn't getting any sleep.  He is just exhausted during the day.  Which makes his excitement for school and therapy minimal. They are actually turning his feeds down a little since he is eating better.  They will wean him off the feeds IF, once he is outpatient his weight continues to go up. So we will not be getting rid of the feeding tube yet, but we are closer.

These are just a few goals, I'm sure there will be more as our time for discharge draws closer.  We really have no complaints and are so grateful for how blessed we are at how well he is doing.