Not out of the woods yet, Day 14

Correct, he is NOT out of the woods yet.....  Biopsy just finished.  It was a much better report than our last biopsy as far as the numbers were concerned.  His pressures last time were 16, this time they were 8.  You want to see them lower than 10, so this is good news.  However, while in the cath lab, they found a pocket of fluid by his left lung so they placed in another chest tube. They drained 380mL off (about the size of a coke can).  Unfortunately, this will be another set back, so we will most likely not be getting discharged on Friday.  We will have to see.  He is in so much pain, just got morphine.

Must admit, I feel like Mother-of-the-Year. The last couple of days, Gage was complaining that it was hard for him to breathe. I kept encouraging him take deep breaths and quit whining. This fluid around his lungs would explain why he was having a tough time breathing. It is hard to breathe when you have something the size of a coke can taking up space in your lung cavity.

He had a much better afternoon yesterday.  He was given a 3-D puzzle from the hospital school.  This was the perfect thing for him.  He instantly started putting the puzzle together, which gave him the stamina to stay awake.  At dinner, we all ate in the Sobrato room; the same room we spent many days in the Lindsey days.  He was laughing and even felt well enough to play Old Maid and take a 4 lap walk.   He went to bed tired, but couldn't sleep when he woke up at midnight.  So, the nurse gave him his melatonin (another med), and he slept well the rest of the night.  This morning he woke up in a better mood and was laughing and happy until it was time to go to school.

Jason flew in this morning.  He could tell I was needing some help with Gage being more needy and the kids still involved in school and activities.  He left at 2:00 am this morning to catch an early flight out of Boise.

Tomorrow we will find out the biopsy results, so stay tune for that.

On a lighter note, Sierra has prom this weekend.  PALY buses the kids to the Exploratorium on Pier 15 in down town San Francisco. She is going with Nori and a couple of guy friends.  She is really excited about that.  Next week Megan has her prom on Oregon.  May not be in SF, but equally as fun. Jason will be home for that one, no doubt about that!  

7:30pm
Just talked to the doctors, they put a rush on the biopsy results.  They are also going to do an ECHO tonight.  They want to make sure the fluid around the lungs is NOT from rejection.  If there is fluid around the heart that could mean acute rejection.  They want to rule the big stuff then focus on the other stuff.  As for Gage, he is in a lot of pain! 2nd dose of morphine is coming!
We will keep you posted.

Yes, that is a new pig tail chest tube to drain the extra fluid.  So far he is up to 450cc. 

 Lots of back pain. Hot pack seems to help.

Earlier, before the biopsy, he was up and having a good time.