July 23, The Today Show....Ready for our close up?

3:50 pm.
Well it is really different seeing yourself on national TV. Glad we had the kids there to make it adorable. Lindsey liked seeing herself but thought she sounds different in real life. Gage's belly looks just as cute on TV and boy is he proud of his scar.

 Lindsey is doing great!! The only concern they have is, she has a really low blood count. Normal would be around 35 and she is 23. If you have ever been anemic you know how tired and weak you feel. Normally they would treat this with a blood transfusion. However, being on the transplant list you want to avoid transfusions. With each blood transfusion you receive the antibodies that are in that persons blood. They want as little of those antibodies as possible for a transplant. They have her on iron and another medicine to help stimulate red blood cell production. BUT, they are still drawing about 10-12 ml of blood a day checking labs. So our big thing today is consolidate. The doctors were discussing how they can consolidate the blood draws so there will be less blood drawn for labs daily. They also talked about what IV's they can discontinue. Hopefully in the next few days she will be rid of most of her tubing. I know she will feel a lot better if she can drop some of those lines.

She went up to the physical therapy gym and played some fun games. She did great and tolerated the walk there very well.  She is still struggling at night.  She called me at 11 pm and 2am crying and wanting someone.  She also called her Daddy back in Oregon at midnight and talked for 45 minutes.  She is tired of the route and sometimes just wants her mom or dad regardless of the time of day or night.

Funny story. Lindsey is funny about her ipod. She is very possessive about that little devise.  She does not want anyone playing with it especially Megan or Hunter.  Whenever they get on it, she gets ticked off and changes her password and doesn't want anyone to know it, even Mom and Dad.  We have very lovingly explained to her that Mom and Dad WILL have access to her ipod and WILL know her password.  We have also had to swear an oath that we will never reveal the password to her siblings!

Sierra is off to transplant camp. She is nervous and excited all at the same time. I think it will be an amazing experience for her. Jason is home trying to figure out where I put everything (i.e. birth certificates, social security cards, immunization records, etc) for all the kids. It is amazing how frustrating it is to not be right there and just get it for him. I am trying to be patient on the phone, because I know he is trying so hard. Apparently I need to get more organized. I feel for him and the crazy few days of trying to prepare for a long stay here with everyone. I love you and appreciate the amazing person you are Jason. Good luck!!