Jan 7, Monday, Sitting around the table

Very proud of Lindsey last night. A few nights ago we watched The Notebook on TV. Of course everyone was crying. (I don't know why women like to watch those kind of shows). Later on Linds  insisted that Dad go home and sleep with Mom. She would be Okay, she would call Riza, her night nurse, if she needed anything. Of course I didn't fight her much on that one, I gathered my stuff, kissed her on the forehead, and I was out of there!  It was wonderful until 4:40 am when someone's alarm clock went off. Someone (the love of my life) said I had to get up to go exercise with her. I guess nothing is free.

Linds woke up at 2 am and 4:45 am.  She was still awake at 6 when I got here, but she never did call us. I know it doesn't sound like much, but it was big deal to her.  If you think you have a rough Monday, she then had a 6:30 blood draw, 2 dressing changes, and a lovinox shot. After the blood draw they found her blood thinning level was too low, so they need to start the lovinox shots in the arm for a few days until they get the level back up. At midnight tonight she will get her 2nd shot. It has been a long time since she has needed shots, but she will be fine (easy for me to say, isn't it).  Also when they did the dressing change a scab came off, and she bleed all over.  They had to repeat the dressing change to clean up the mess. By now she had made up her mind she was NOT going to have a good day! 

So tonight we all ate together in the Sobrato Room. It was really nice to sit around and let the kids talk about their first day back to school. Still mixed emotion about returning. Unfortunately, no snow day here. Fun to hear about the snow back in Oregon.  So we went around the room asking each kid about there day. Gage gave us a long monolog about his little hospital pre-school.  It was so cute, but only mom could understand what he was saying because she was there. Whatever it was, he was excited to tell us. When we go to Sierra, I could tell she was holding back something. You could see her kinda skirting around the issue. My anxiety was rising and I forced it out of her. Nancy from the Heart Center came by and told Stacy and Sierra that they had taken a 2nd look at her biopsy results.  She actually has a 1B rejection (4 being the worst) grrrrrr.  So they are upping her predisone (steriod) and rechecking in a month. We were hoping / planning on 3-4 months. The fun never stops does it.

Stacy had read a really good article about regrets and resolutions. It talked about how people think they will be 'happy' when this happens or if that happens, or when we have this or go there. Happiness is something we decide on.  It was an article that talked directly to our family.  We are having the experience of a life time (I hope).  It really was nice to sit around that little kid table in the Sobrato Room, eating off paper plates, and listening to the kids talk about their day.  That article was the push and motivation Stacy and I needed to keep going.

Work is good. Starting to get the hang of this remote office work style.  Still waiting for someone to break the English code.

Shaambak continues to improve and Dina is looking way better.

Lovinox shot in 50 minutes. Good night.
 

 Notice how many IV's and chest tubes he does NOT have. He is lookin good.

 Gage-a-real-eous, during dressing change

 The canula site during the 1st dressing change. Look better?  Who knows.