June 19, 'Cath' Day

Pretty boring day yesterday, Monday.  My Mom and Dad were here.  Left about 10 am. Sierra and Seth went with them.  So now it is just Stacy and I until Friday.  On Friday Renee, Randy, Sierra and Gage will be coming over. Gage and Sierra have appointments next Wednesday.
Stacy and I have heart appointments tomorrow over on the adult side.
Lindsey ate poor in the morning, ate a bit in the afternoon.  Went on 2 short walks, she didn't want to do it, but we talked her into it.  Still on about 7 IV's (I think).  Slept well last night except she had an arrhythmia last night.  Not sure what that means, except it is NOT good.  More signs of heart failure.  They said it didn't last long and that she slept thru it.  If the arrhythmia does not stop, then I think they have to shock the heart back ( I think?) I just know it is not good!

Today is a big day. She is going in for a Catheritation procedure.  It's kinda like a biopsy except they are going to test the pressures in her heart and lungs.  They need this info for the heart transplant.  Lots of risk involved.  She still has the blood clot in the right side of her heart.  The clot could move and go to the brain, spine or other parts of the body causing stroke or paralisic.  Her heart could go into another arrhythmia and they would have to shock it back.  There is even a risk she would have to go on the echmo machine.  This is the heart / lung bypass.  When they do this procedure on such a sick heart, there is more risk involved, a risk that needs to be done to prepare for heart transplant.
Honestly, I am scared to death, blood clots, echmo, arrhythmias, all words I don't like. This is where we are at, and hope and pray for a good day.
Below a some cute pictures of her getting her hair washed and playing nerts.