5:30 pm. Lindsey did not do well with the feeding tube. She was throwing up this morning from the tube 'feedings'. They took the tube out this morning and she feels a lot better. I talked to her on the phone and she was excited to have that thing OUT. The problem is she is still not eating, and hasn't for a few days now. Dr. Bernstein said if she doesn't eat something to keep nutrient up then they have no choice but to go to mechanical support, (the Berlin Heart). Lindsey was craving an Oreo milkshake, so Stacy rode her bike to the Stanford Mall and bought an Oreo milkshake. Bernstein was saying if you give it to her in a shot glass size (small little portions) she may eat more, rather than presenting a 'Burger Bob style milkshake (which are very good). Stacy and I have our doubts about her ability to eat anything.
So here is our top 3 things to pray for.
1) A donor heart tonight! A family is prepared to make the tough decision to donate life.
2) An appetite of any kind. That her heart is stable enough to support some kind of food.
3) Dr. Bernstein and the rest of the team. That they can be guided by the hand of God and know the best treatment for our Princess.
That's it, just 3 things.
Lindsey has been on the list since June 20, a lousy 9 days, and has been in the CVICU only 16 days. Feels like forever.... My chin hair just isn't growing fast enough!
Thank you for your comments, love, and prayers
Jason
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4 comments:
We will most definitely be praying for those things!! We love you guys! Thank you for updating so regularly- I'm constantly checking! Love you guys!
Thank you for being specific. It's hard to know what to say all the time. Can we make this weekend an official Bingham family fast?
Praying!!!!!!!!!!!
Okay. What is going on? I did not realize that you guys were still going through this. Some one still needs a heart transplant? This is UNBELIEVABLE torture and agony that you guys are going through. I want the best for you and your family.
My son went to sleep crying, because he has sun burned shoulders and wanted more than French Vanilla yogurt and water for dinner. I guess it is all relative... on the scales kind of thing.
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