June 30, 11:00pm, Unbelievable!

What a day. Lindsey is actually doing well... I guess. The Berlin is pumping like crazy. They have her lightly sedated so we are able to talk to her and hold her hand. She wants a drink of water, but the ventilator and other hoses are in the way. There are a lot of stuff going into her. I see 7 separate IV's, 3 chest tubes, hose in her nose, ventilator, some other hose draining fluid out of her lungs, wires coming out of her chest, and I think that is it. There is a nurse here full time watching her.
Scott and Tanner Hayhurst came by. Tanner had a basketball tournament in SF. That was nice of them to come visit. You could tell it was hard for Scott and Tanner to see Lindsey that way. Then, out of the blue, Greg and Erin Ripplinger come walking down the hall. They just came over to visit. Very nice of them. They will be here again tomorrow. Gage and I flew in today. We left our car at Hayhurst in Boise and flew on SouthWest. We got here around 4:00pm. Stacy was asleep from her long night before.

Your not going to believe what I am about to tell you. Gage had been acting funny for the last few days back in Oregon. Low appetite, tummy aches, low energy, and very winny. I have been taking his blood pressure and his pulse sounded strange. While I was home I called and told Stacy who then talked to the Drs. I brought Gage with me to keep in eye on the cute little 'Gage-a-real-eous' (his nickname). The nurse that is taking care of Lindsey took his blood pressure and pulse and told us we should have him formally evaluated in the pediatric ER. Long story short, Lindsey is in room #2337 and Gage in in room #2335! No joke. He has a 'Complete Heart Block' meaning he has a very irregular heart beat. Unbelievable! They are going to watch him very close tonight. He has an IV, and an external pacemaker. They have also marked his neck in case they need to do an internal pacemaker through his neck, kind of like a catheritation. Basically, he has major heart problems that are probably caused by his Cardiomyopathy. We haven't talked much about his heart problems because of our Lindsey Lou, who is right over there on the Berlin Heart. Unbelievable! So Lindsey and Gage are next to each other in the CVICU. Unbelievable! I am so sick to my stomach right now. When Dr. Axelrod (very nice guy who looks like Waldo) was showing how much his ekg had changed since June 8 I almost fainted, I was light headed and just couldn't believe was I was hearing and seeing. In my opinion, we are going down the same route as Sierra and Lindsey, mark my words. What a nightmare. Right now they are doing an echo to look closer at his heart.  I really don't want to know the results. They did a chest x-ray, but again I don't what to know, I just don't. Don't forget, Lindsey is STILL over there on mechanical support.

Ya know, I always thought that the Sierra events 6 years ago with the 'end' of that trial.  Maybe, that was preparing us for something bigger.

Stacy is still strong as can be. What a woman.

 You can see the Berlin Heart at the bottom on the striped towel.

Scott and Tanner Hayhurst.

 Gage getting an echo on the right. Stacy with Lindsey on left. Still - Unbelievable!

 Gage with Dr Axelrod on the right.  Big white pad is for the external pacemaker.

 This is Kerns' cabin where my family is having a family reunion this weekend.