Feb 15, 10:24 pm 36 hours post transplant, Old vs New echos

Again we love the comments. They are always a strength to us. Boys are spending the night at Liz Niccums and Megan is at PK's. Sierra just wanted to stay with her Mom and Dad. I don't blame her, it was one of those days for her. Lindsey still sleeping most of the time, needs forced air, but mostly needs to have those kidney's kick in.  When kids go on the heart / lung bypass the the organs often take time to come back. Basically we are waiting for her kidney's to kick, then she will pee off a ton of fluid, including the sleepy medicine she received during transplant, and the fluid she is retaining. 

A lot of this reminds me of Sierra's recovery. After a couple of days Sierra's kidney's kicked in, she pee'd so much she looked like a prune.  That could very well be the case by morning.  But for now she mostly sleeps.  Since transplant they have dropped 3 of the IV's.  Again they say she is doing as well as expected.  Her cannula sites are open and still bleeding.  They have them packed like a good ole' cancer eye cow. (You Oregon folks would appreciate that, California, I will explain on Sunday)  Her INR (the blood thinning we worried about for months), is now too high at 2.1.  We used to want it between 2.5 and 3.5. Once they can get that level to 1.5 they can remove some of the tubes and central lines and the cannula bleeding should slow down.  She now gets daily breathing treatments, same one's Sierra received.   Still no 'Lindsey' personality yet, but she does want to know exactly what people are doing. She even wanted to push one of her IV meds but they wouldn't let her. Go figure.  Again this is all part of normal recovery, they say.

Dr Berstein came by just to see Sierra and Lindsey. He wanted to congratulate Lindsey and explain more about Sierra.  It was very nice of him to make the extra effort. He explained Sierra's situation, basically the same as before. But when you have the Department Head and Sierra's personal doctor who has been with us since the beginning talk with you outside of rounds, it just helps bring a sense of comfort and confidence to you. On Monday they will decide as team what and when they want to do treatments.

I think that's a wrap. The day is recorded, feeling shared, and I'm going home. Lindsey have a good night, call if you need, and well see you in the morning.

Berstein and his kids.

This video helps explain her heart disease, DCM.