When a child has major heart surgery, a seizure, and is pumped full of steroids, her emotions are a bit out of wack. She honestly thinks she had a horrible day. Tears have been falling, and she doesn't know why. (Makes me wonder if this is what we have coming with 3 future teenage girls.)
Sierra's plasma pheresis went well today, she was pretty nervous but did just fine. The procedure took about an hour and a half. The old '60's lookin' machine pulls the blood out, spins it to separate out the plasma, and replaces it with fresh plasma. Given her weight and size, the blood should have circulated through the machine one and a half times. On Friday she will repeat the procedure in the Short Stay Unit, then Monday, Wednesday and Friday of next week. They do the first treatment in the ICU to watch for side affects, but the next four treatments will be in the Short Stay. The plasma is where the damaging anti-bodies are. Hopefully by cleaning out the antibodies and replacing them with 'good' ones, her heart will improve.
Sierra is tired and her shoulder is sore but she is doing well. For now, she is going to go to the hospital school to do her Jordan homework, but may go to Jordan as her shoulder heals up.
Tomorrow is a big day for the Princess, it is her first biopsy. She will go in around noon and see where she is at for rejection and heart pressures. Also hoping she will be transferred to 3 West. If she is up for it, we may even cut the chin hair. But before I give her any sharp objects, we need to have a pretty major change in attitude.
That's it for now, good day. Today was a good example of not letting yesterday's lows get to low, but be careful of the highs, everything in balance. Today we are truly grateful for the many prayers being answered in our behalf. As always, thank you for the comments, love and support.
Hangin' out is Sierra's room. Doin well, but not much for personality.
Today Chloe went home. Not just the RMH, but HOME! Lindsey mustered up a smile, but she didn't want to.
The machine. Looked like some sort of old Reinke pivot panel.