10:10 pm
Today was a little bit of a downer day. The doctors came in and told us that the medicine they had Lindsey on was not working. Jason and I had a feeling it wasn't working. She was still throwing a lot of extra beats. During the night she had another run of extra beats altogether at a faster rate. The very thing the beta-blocker was supposed to be stopping. So, we are stuck in the CVICU for another 3 days at least. Which also means no school, PT, or playroom. No leaving the unit! She took it pretty hard, but is dealing with it.
They started a new med called Amioderone, which is a really strong med. They want to monitor her really closely as they start this. They are watching her heart rate and blood pressure. Amioderone will be started IV first then they will change it to oral. If that works then we can go back upstairs to 3 West. Here is to hoping it works, because I don't know what the next option is. We are pretty sure that her increase in extra beats is the cause of the alarms on her Berlin, even though the doctors aren't saying it is. A nurse kept really detailed track one night and the alarm was always with or right after some PVC's (the extra beats).
Our adorable little friend Tristen got to go to the RMH yesterday. Stephanie says she looks so much better and is doing great! We are so happy for them. They will wait there for a few more weeks until her next surgery in October.
Jason comes back tomorrow and we are so excited! However, we are very sad to see Betsy and Logan go. It has been so good for all of us to have them here.
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6 comments:
Here is to hoping the medicine WORKS!!! You are doing the best you can in your balancing act of highs and lows and not sures! We love, miss, pray and think of you everyday. Aunt G
Amen to what Garrity said. Lots of lows, highs, and not sures. I hope and pray for the highs to be higher but I am grateful the lows are not lower!
Love to you all from Sugar City!
Josh, Tara and cousins.
Praying for you guys and your family! God Bless <3
Amen to what Garrity,Josh,Tara,cousins and Anonymous said. The Olsens and several people who are connected to us, who have never met you and your family but who follow your blog and now feel like they know you,are praying daily for all the Bingham clan. God Bless you all! Mike and Dale Olsen
I hope the meds work. Thanks for the update. Your family continues to be in our prayers.
Wow, are we missing you guys already!! Can't wait to call you to give you our traveling experience....it was full of 'adventure' or something like that. Let's just say it's turned into an extra long traveling layover!! :) Hope the rest of the day treated Lindsey Lou well being on the new meds. I'm sure it is a wonderful feeling being alll together again. Love you guys and praying for each of you. XOXOXOXO
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