Sierra in California

Just a note to let everyone know; Sierra is in California. Not by her choice. Sunday she was complaining about swollen feet. They were huge, so to make a long story short, she got some x-rays and an echo cardiogram and California wanted to see her now. Today at 11:45 she was life flighted from Boise, ID to California. We were told, she is in rejection unless proven otherwise. They repeated her chest x-ray and echo there and found them to be normal. They ran a test called a DSA test, which stands for donor specific antigen, which came back positive.

Her biopsies she has been getting, test for rejection in the muscle cells of the heart. Which hers have been 0 and 1A's signifying no need to run the DSA test. However, with her having a full year of 1A's and now a 1B they wanted to run this DSA test. So, like our good friend Shawn, they are now looking at rejection in her blood. They are giving her some IV immunoglobulin which she will have to continue monthly until her test comes back negative. They have also given her some steroids and plan on doing a biopsy tomorrow evening. Once they know the results of that then they will be able to make a plan for her care. Worse case scenario she will be there for 2 weeks.

You must know, she is acting great. Not wanting to be there , but is coloring reading and could care less if the doctor's are talking to her or not, she "wants to go home." I will update as I know more.

Sierra in the PICU in California.