Gage has been battling some withdrawal. Last night he slept two 20 minute increments and then he was awake until 11:30AM today. Finally, he gave in and slept for 4 hours. The sedation medicine he was on causes him to shake a little and constantly have to move his arms and head. It also makes him have a tongue thrust which I was a little worried about feeding him. It was like his suck reflex was gone.
The doctor said it was OK to feed him and we would give it a try and see how it went. He did great and it is so nice not to have to pump anymore. He is down to 1/2 L oxygen and still gets breathing treatments and suctioned with saline and a small tube. I really don't like to watch that part of his care. He tolerates it well though and they are talking about letting us out on the regular pediatric floor tomorrow. He is very, very weak. He can barely hold his head up. It is like holding a newborn. But, he has been bed bound and unmoving fo the last 11 days, it has to take a toll somewhere.
They need to continue to medicate him through the withdrawals, wean him of his oxygen, make sure he is eating, peeing and pooping, and that he doesn't need anymore breathing treatments. THEN we can go home. So, I am hoping by Thursday or Friday we are able to go home. Thank you all for your comments. With love from our last night in PICU.
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1 comment:
Stacy, Thank you so much for keeping all of us up on little Gage's progress. I'm so happy that he is improving so quickly. He has a strong body and spirit to have overcome so much, and so do you. You and Jason are an example to all of us. Hang in there, doesn't sound like it will be long until you're home. Hurrah!
Kay Patterson
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