Thursday, January 21, 2016

Drum Roll Please!! (No, not a heart)

We will start off with the good news.  Lindsey's biopsy results were a ZERO!! Another one for her in the books.  She will have clinic in 3 months then repeat the biopsy in 6 months.  She is very solid in her treatment.  Everything seems to look very good and stable (we could use some of that right now).

Jason left to go back to Oregon today to get some work done and prepare for tax season.  This is going to force us all to step up our game a little.  Sierra will drive her and Megan to early morning seminary at 6:40.  They will then drive back to the RMH and ride their bikes to school, so I have the car if I need it. We only live a mile from their school.  This will not be that difficult for them.  Jason has been riding his bike with Lindsey to school so that she knows what route to take.  Today was the first day that she had to ride home by herself, all the way.  I was nervous for a little bit when she called to ask me what street she was supposed to turn on.  However, she made it home just fine.  I will continue to put Hunter on the bus and be there when he gets off.  I also go with Gage to the hospital school and sit with him there. At least this is our plan for now.  We will see how this goes. As long as no clinics or physical therapy is scheduled in the afternoons or early mornings, all should be well. It will be nice to get enough of a routine down, that it can take the stress off of Jason feeling like he has to be here.  We will miss him, but we also have a mortgage we must pay.

Tonight, Megan had a scrimmage against a private school called Pinewood.  She was really nervous for this game and was sure they would be blown out of the water.  Lets just say, it was a very intense 4th quarter, but we won by 5 points.  Megan ended up making a couple 3 point shots and 3-4 2 point shots. They fell asleep a little bit in the 3rd quarter but made a great come back.  She was really excited. After Megan's game, we went to Hunter's cub scout pack meeting. This is where he presented the cake that he and Jason made.  They did a cake walk at the end and everyone went home with a cake other than the one they brought.  He thought it was great!

Gage has clinic tomorrow.  We'll see how everything looks.  He has thrown up twice today.  Once this morning just after taking his medicine.  Then again this evening when he was taking his medicine.  With this feeding tube sitting in the back of his throat, he tends to gag a little easier, especially when taking his pills.  Once the gag reflex starts, there is no stopping.  Other than that, he has been acting great and appears to be very stable. We will see if the doctors think the same thing tomorrow.

10 comments:

Danyell Nesser said...

Trinity misses Lindsey SOOOOOOO much! This was a nice update. I love hearing things are going somewhat smooth for you guys. So much change...you are all so strong - ☆BINGHAM STRONG☆ A new term in our household !!! Thoughts and prayers from the Nessers. Love you all πŸ’œπŸ’™πŸ’šπŸ’›

Danyell Nesser said...

Trinity misses Lindsey SOOOOOOO much! This was a nice update. I love hearing things are going somewhat smooth for you guys. So much change...you are all so strong - ☆BINGHAM STRONG☆ A new term in our household !!! Thoughts and prayers from the Nessers. Love you all πŸ’œπŸ’™πŸ’šπŸ’›

Jana said...

What great news- Congrats Lindsey!! Awesome update. So wonderful to hear that things are setting down a little, at least for now. I really enjoyed watching you all on Dateline. You're a beautiful, strong family. Loads of love from Colorado.

Amy Gee said...

Shawn and I watched you all on date-line. Loved it, shed lots of tears, and at the end Shawn said, "Holy Cow! Talk about a spiritual Iron Man!" You are all AMAZING- you inspire us and we pray for you.

Robert Golding said...

Hi Folks,
Our organization "Organ Transplant Awareness Program of New Mexico" is a group of people that have gone through the transplant process and understand the unique circumstances that we all have been through. Our prayers and thoughts go to your family as you go through this process. I am a Liver and Kidney recipient and the president of OTAP. We have added your story to our website www.otapnm.com under the heading of Stories of Hope. We hope this helps people in all walks of life understand the need for organ donors.

IntendedParentVal said...

Sending positive vibes your way!

Unknown said...

Hello from Texas! I watched your story on dateline too and smiled and cried seeing the strength your sweet family has. My family will be praying for yall, for health, healing, direction, strength, and love! Know that you are never alone even in your darkest hours, and thank you so much for being such an inspiration.

Unknown said...

How are the other two children doing?

Rcontreras said...

Keeping your family in my thoughts and prayers. Just wondering and I am sure you have answered this before has genetic testing been done on both sides of the family's and found any clues? How about environmental testing and anyone else in the area or region with this condition as children? The strength you all have is unbelievable. God bless

jennifercav said...

Yeah that is great news! So happy to hear the great report. Great job managing everyone's schedules. I think I would need a spreadsheet to figure that out! Continued prayers from Central NY. Jennifer