Friday, December 21, 2012

Dec 21, Megan and Hunter's turn

Back in the groove today. Kids had their last day of school before Christmas break.  Pajama day at Jordan and Nixon, so the kids went pretty casual today. My Dad flew home today and I went to the office for a bit.

At 1:00 Hunter and Megan had their 6 month checkups. They both had echo's and EKG, we met with Dr Seth Hollander. So you want to know how their reports were, well so did we.

After the appointments, and some time in the play room, we went on a family outing to the blood draw lab. After meeting with the geneticist, they want to draw some blood on the entire family. They have not given up on the genetic testing and want to take a different approach.   So, for 'family night' we went for a walk to the Stanford side to get our blood drawn.  What made it fun was everyone got poked except Lindsey.  She got to sit around, take pictures, and coach everyone on how to get poked. Stacy was first, then Dad, Sierra, and Gage.  He wasn't crazy about it but it went okay. Megan was next, and we ALL loved watching it!  It was the first time in her life she had been poked for blood.  She turned quite pale and was a bit scared but kept it together.  Lindsey filmed the whole thing and Sierra had a smile on her face. Last of all was Hunter, he went in screaming but it was over before he could throw much of a fit.

After the excitement, we came back to 3 West and met up with the Gee's.  They are the good friends from 6 years ago that helped out so much when we didn't know a thing about the area. They have 2 really good kids, Kerby, a senior at Palo Alto HS and Kerry, a junior.  They are great examples for our kids to look up to.

So that brings us to tonight. It is currently 10:45 pm and Lindsey is in a heck of a situation. She asked the nurse to crush up her Magnesium and put it down her tube, because the pills are a bit tough to swallow. The nurse and I warned her and said it might plug up the line and she would have to get a new tube put in (NOT FUN!). Lindsey said that was okay, the nurse could just replace the tube. The nurse warned her again, and Lindsey said go for it. So now it has been over 2 hours and the nurse is trying to get the plug out of the tube. LOTS of tears are flowing, but she is accepting her decision. They are trying one more med, that might dissolve the plug, but no guarantees. May be a long night if they need to replace the tube.  Tell you what, this is a great lesson in accepting the consequences of your decisions. Just another life lesson learned from this experience.

We are all a little bummed, we were hoping Stacy's Dad could come for Christmas, but he has become very sick and won't be coming. To bad.

 Our world.  No where else to decorate.
 Megan getting really serious as she watches the Master get poked.
 Gage's turn
 "Oh-yeah, no pokes for me!"

 Megan psych'n her self out just before the poke. We were all loving it!
Kerry and Kerby Gee with the gang

Oh....And the test results. (You thought I forgot) Megan and Hunter are unchanged.  Both still have the slight irregularities, but still within normal ranges. No meds and they will see them again in 1 year. They are showing NO signs of heart failure like Gage is. All their questions were easy to answer.

Finally,
What did the Zero say to the Eight?....
Nice Belt (courtesy of Sierra's friend)



5 comments:

Anonymous said...

I am wondering if there is a "family of the year" award given out? Because if so, your family would surely win! How many families can do what you do each day and remain mentally sane, and find happiness in a FHE blood draw trip, plus kill, gut and cook a buffalo and still tuck everyone happily in bed at night? Yep, you would surely win! Lindsey and each one of you are in our prayers. We love you, and are so amazed by you. Thank you for teaching us all! We love you!
Prayers and love from Korea!

nickandhil'sfamily said...

I love how you can make a family blood draw so entertaining and the look on Megan's face is priceless! Remember her immunizations when Sierra was going through her stuff? That is a bummer about Stacy's dad-I hope you have a full weekend.

Anonymous said...

I'm with Megan... have to mentally put myself some place else when I get poked. You guys sure know how to have a good time! You're experts at turning life's lemons into lemonade. Satan has absolutely NO CHANCE at any of you! Love and hugs to you all... Phil and Judy

Tara and Josh said...

Wow, Megan really looks like her Mom! Loved your post but I was a little annoyed at you effort to stall out the results of the Hunter's and Megan's appointments. Glad to see you are still you. :)
So I am thinking you have your work cut out to somehow get in the Christmas Eve tubing tradition.
Maybe a little iceblocking down that long hall that you videod several weeks ago? Also, good luck getting the sheet up.

Anonymous said...

Wow, what fun that family blood draw must have been. Love Megan's serious face and I agree with Hilary it is simply priceless. Happy to hear some good news about Meg and Hunter....YAY! Heres to praying for a blessed weekend and I bet the kiddos are super excited for a week or two off for Christmas vacation. That will be a nice change for Lindsey to have her sister time! Thinking and praying for great things...loves, hugs, and prayers xoxoxoxo