8:30 am.
Lindsey slept good, but there are some weird things going with her heart.
1) Her heart is throwing more pvc's, a whole bunch of them in a row. They don't care about the stray irregular heart beats (pvc) but when she has a string of them, now they take notice.
2) Her L-VAD (Berlin Pump) wasn't filling all the way, so they had to give her some IV fluids twice. When they did this, it started filling properly.
3) The Berlin continues to give that 'Check left pump and driving tube!'. I did use ear plugs last night and it seemed to take the edge off. But it still went off 4-5 times last night.
4) The nurse and fellow on call want to put the feeding tube back in. There are more arguments for doing it as issues start to rise.
She is still acting good and working on her first 'shake'. Still planning on school and PT. No fevers and good blood pressure. The doctors will discuss all the above today in rounds.
As long as they take this stuff serious before it turns into something serious.... then I'm ok with it.
Amazing how fast things can change.
ALL this aside, which you can't do, we have Sandy Cummings and Keith Morrison from NBC here filming various aspects of our day. They showed up at 6:30 this morning to record us doing our 'morning thing'. We had eggs and toast and Hunter gave the morning prayer. We 'tried' to carry on a normal conversation about school, volleyball, Lindsey, and the day with the cameras rolling. Then they filmed Sierra, Megan and Hunter heading off to school. Now they are here right now to film us doing our 'morning thing' with Lindsey including school and PT. I have told them, the doctors and nurses, and everyone else, that Lindsey comes first, no exceptions! They have been very respectful of that and better be. Later on they are interviewing Bernstein, Mary Burge, Katz and others.
I will report back as we find out more.
Subscribe to:
Post Comments (Atom)
Posts
9 comments:
Hi all...
We are behind you every day, supporting in prayer! I hope these quirky things resolve quickly and you have a nice uneventful weekend with Jake, Wendy and the kids! (Unless, of course, it is the BIG event).
Keeping the prayers coming, especially for wisdom for her doctors and the donor heart to come soon. Love and miss you all!
The Fritz's
Just to let you know we are still on the prayer chain too - everyday. You are all doing so good handling one of life's biggest challenges and are a huge inspiration to all of us handling the smaller stuff! Love her smiles lately. Hang in there! Lindsey Rocks and you guys Roll! The Barfuss'
Thanks for all the blog updates. We follow it so closely and appreciate being able to know what is going on and how you all are doing. Tell Lindsey and all your sweet little ones to hang in there! I've been thinking a lot about Sierra and Megan--middle school is tough in the best of circumstances. We are thinking about you all and praying for you always! -Brenda & Family
Still praying for you and your family.
A Meal in the Mail, from the Cooking Up Faith blog, would love to send you a restaurant gift card this month to help out in a small way and let you have dinner on us!
I know your schedule is so hectic, but if you could send us your address or e-mail address we will get that gift card to you!
You can contact us as cooking upfaith@satx.rr.com.
Thanks, and may the Lord's peace be with you today.
We are still here praying and hoping. Lindsey and your family will be a special part of our fast this weekend. Lots of love and hugs! janelle
Ohh - we don't need weird things going on with Lindsey Lou. Prayers that things calm down and that all families can prepare for the new heart. I so wish I could go with Sierra to her MATH NIGHT. Tell her I think it would be FUN! And, anything she wants to share with me would be fantastic. I love new ideas. Love and hugs to all of your kids and may God bless you all! Our classroom is ready and we're hoping Lindsey Lou is up for a skype session with us next week. 26 desks in our little classroom. I so can't wait for our new classroom to be finished. I forgot to text a picture of Lindsey's desk. I will try and remember to do that. We have a stuffed bear from sweet Logan. It has hearts on it and is saving Lindsey's seat until she returns to Powder. Ok - I am supposed to be doing my homework while my family is at the football game. Better finish up. Much love to you all!
Bummer about all the new changes for the day...hope it didn't get the best of Lindsey's happy and feeling good attitude. You are doing awesome Lindsey....keep trucking on! :)
Sounds like another busy day with the camera crew...hoping for no "boogies"!!! And the big question is...was there a make-up session??? Hope you took some great pictures to share of The Bingham Family inspiring others!! YOU are ALL AMAZING and INCREDIBLE!! I bet the kiddos are excited about a long weekend and especially excited about Jake, Wendy, and kiddos to arrive. Enjoy your family time. Thinking and praying that the Heavenly Father keeps his loving arms wrapped around Lindsey, donor families, Doctors, nurses, and your entire family as the journey continues. May the Lord BLESS each of you. loves, hugs, and prayers--xoxoxoxo nedrow's
Praying this morning finds everything going well, with no complications. Praying still for a donor heart...and for the courageous family who will provide it. Praying for wisdom on behalf of ever single member of the medical team...and praying that each one of you there will feel the love, strength and compassion of all of us out here as we continue to hold Lindsey Lou and each of you up in prayer!
Post a Comment