Nov 13, Back to the ICU.

Been a rough day so far.  He hasn't eaten much and has been very uncomfortable all day.  The best part of the day was between 2-4 when Megan and him were playing Wii Mario Bro in the play room.  But other than that, he has been pretty miserable.  He struggles with breathing, and his feet and hands are cool. His tummy pain has been between 4-8, this is all with the increased IV milrinone. They have done blood draws which is showing increased heart failure.

So tonight they are going to keep him on oxygen, increase the IV milrinone to .75, increase his IV lasix, and hold his feeds.  All of this to see this will ease the strain on his weak heart.

They will watch him pretty close for the next 12 hours.  If he doesn't perk up, act better, and have better stats, they will move closer to the HeartMate.  Dr Rosenthal and a nurse practitioner had a good long visit with us about the HeartMate and how it has replaced the Berlin on kids his size.  Time will tell.  Below are some pictures of the devise.

Lets not forget that Sierra had a biopsy today.  It went very well.  Her heart pressures are down slightly from last month.  That's good.  We will find out the rejection results tomorrow.  If she gets another zero, they will drop her predisone from 7.5 to 5.

So now we see how the night goes.
This would be a night we specifically ask for prayer for our small 40 pound 7 year old sick son.

I visit on 3 West from Lindsey's favorite Riza shortly before being transfered back to the CVICU. It was sad to see Gage so miserable

 The bright spot of the day, when Gage was beating Megan and Mario Bro.  There was a lot of excitement there.

Leaving Room 3241

Meanwhile, Sierra and Rosalee heading in for biopsy

 Couple good pictures of the HeartWare and where it is placed on the heart.

The HeartWare is like an irrigation motor, a very expensive and small irrigation motor.  Unlike the Berlin, it does not pulse, to continuously spins.  More on this as the store unfolds.  ACI this is for you.