Possible Discharge - June 2, 2015

Sierra is feeling better.  She is eating full meals, sleeping well and tolerating longer walks without getting winded.  We have had a deja vu week hanging out in the hospital with Sierra.  A very similar schedule that we had with Lindsey.  Get up, have breakfast, go to the Sobrato room, play cards, back to the room for lunch, go for a walk around the 3rd floor, back to the Sobrato room for coloring or cards, returning to the room for dinner.  After dinner, one more good walk before going to bed. School helps break the schedule up a little bit, I am not sure what we are going to do when it ends this Thursday.  Today in rounds, they talked about a possible discharge on Friday, but I am shooting for Thursday.  Tomorrow she will have a biopsy done, check her coronary arteries and pressures and fix her picc line.  Her picc line is not in as far as they would like it to be.  The vascular access team could not get it to go in further due to narrowing of her vein.  The cath team have a few more tricks they can do in the cath lab to open the vein and thread the picc line in where it needs to be.  This is in preparation for discharge.  

Sunday, the Palo Alto firemen came to the RMH and fixed dinner for everyone.  They do this once a month and it is always amazing food.  Gage was so thrilled to see all their trucks and get to go inside them.  It has been great having him here.  He does what he was best at with Lindsey.  He runs ahead and hides from us and we see if we can find him.  It is pretty funny, because all the floors make a circle and are glass most of the way around.  You can see Gage as he is running to the next spot to hide.  Don't worry, we act really surprised when we find him.  

Sierra has made a friend who has been in and out of the hospital for the past 3 years.  Her name is Morgan and she was here when Lindsey was in the hospital.  She has an autoimmune disorder, so they hospitalize her every time she has a "flare up."  This last admission has been 3 months, but she is going home tomorrow. We all took a trip to the cafeteria yesterday.  It was quite comical, I wished I would have gotten a picture.  Morgan had her big pole with 3 pumps on it and her wheel chair.  Sierra had her IV pole  and Gage was bringing up the rear.  Between the 2 IV poles the cafeteria space shrunk pretty quickly.  Morgan hung out with us in the Sobrato room and we taught her how to play Nertz.  We will miss hanging out with her when she goes home.

Gage by the ambulance.  Looking around. 

This is the "great big" fire truck, Gage and his buddy Wyatt.