Today we have Sierra's biopsy at 10:00. She hasn't been biopsied since May. We are hopeful her pressures and rejection, both antibody and cellular, are under control. They were trending down in May, hopefully that trend is continuing.
At 10:15 Gage has his pacemaker check, echo and ekg down in the Heart Clinic. He sure has been doing/ acting great. They will see how his heart is doing and how much he is riding his pacemaker.
At 11:30 Lindsey has her biopsy. This is her 6 month checkup. If things are okay, they may move the biopsies to every 2-3 months depending.
Already seen many of the 'heart' kids. We have seen Shambaak, Rolieo, Analees, and Leif. All dealing with a variety of issues, but doing very well. We have also seen many of Lindsey's favorite doctors and nurses.
Analees and Lindsey
11:00. Sierra is in and Gage is in the middle of his echo. Report later.
2:00. Kids done. As for Gage, all good except one thing. His weight is DOWN. His heart doesn't look any worse, energy level about the same, does NOT complain of tummy aches, he just needs to gain some weight. His pacemaker is still pacing. Check up in 3 months.
As for Sierra, her heart pressures are trending down from 13 to 9. They were 18 back in February. All good stuff! That means we are not staying. There is always that little voice sitting on my shoulder saying, 'What if? What if her pressures are up, what if rejection is back, what if...what if...what if' Today they are good and we will find out the biopsy rejection results tomorrow.
Lindsey is also done with her biopsy. She again did it awake and did a great job. Her pressures are also 9, and will find out the results of the biopsy tomorrow. If it is good, she will go to 3 month checkups.
Gage and his echo
Sierra started on her IVIG.
Lindsey's good friend, Colette
...with Art the Clown
3 West and the infamous Shannon and Suzanne. Look how Lindsey's eyes light up. Good to visit her ole gang.
6:00 pm. Down to just Sierra and I. Stacy, Lindsey and Gage are all off to Liz or Michelle. Sierra will be hooked up to the IV till about midnight.
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2 comments:
Great news all around!! Owen was in Biopsy from 8:30 to 10 so he must have just been right before Sierra. We always miss you guys. :) Art stopped by the RMH after being at the hospital visiting you all. Owen loves him so much!
Glad to hear all is well. Prayers for all our kidos to have great biopsy results tomorrow. Sending prayers.
Andrea
So Happy to hear your great news!!
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