Sierra will also get an "annual study" done on the 4th of April. This will check to see if all the treatments she is getting are working on the antibody rejection. As well as rule out coronary artery disease as a contributing factor to her high heart pressures. This is something they see sometimes in transplants. They try to prevent it with certain medications, but for some unknown reasons, some kids still get it. They have been treating Sierra's with a drug called Rapamune. This will either reverse it, keep it from worsening or do nothing. So far, hers has looked better. The only treatment for CAD is another transplant if it worsens. Not a lot of answers right now. Hopefully after this biopsy we will know more and have a better plan of what is next. She still acts and feels great, which is the deceiving part.
Megan had a little bit of a yawner game yesterday. She played well and they won 34-2. She had a practice today. Her last game will be tomorrow and it is supposed to be a pretty exciting game. They are playing Termin, a good rival school, with some really good players on their team. Unfortunately I will have to miss this one. Lindsey has IVIG tomorrow, which is a 12 hour infusion starting at 11 am. I can't wait to hear all about how they won! This will be the last season game, then they have tournaments next week and that will be it for basketball.
Megan and Sierra had their "spring" band concert. It was really fun to have ALL my children there this time. During their winter concert, Lindsey called and listened on the phone from the hospital, but it just made her too sad to not be able to go. This time I listened to the concert without even having to look at my phone. So, so, nice to have her out of the hospital. They both did well and have improved since Christmas.
We have had some fun visitors the last couple days. Art "the clown", came to visit us. This time at the RMH. He brought us some of his yummy, famous, bundt cake. Very nice of him! We were able to visit with Angel and Ben. Ben was here for clinic today and we ran into them, Ben is looking really good! Lindsey's cute friend Colette also came by for a visit. It was really fun to see them all. With the beautiful weather here lately, it is a great time to be out of the hospital.
Jason, we miss you TERRIBLY!!! (is that convincing enough, 3 exclamation points). Thank you for the sacrifice you are making for us. We love you very much and are VERY excited to see you Saturday. Time to get my running shoes ready for tomorrow.
Art and Lindsey. We have pictures of Art 6 years ago at Sierra's birthday party. A great guy!
Hunter trying to figure out how to spin the plate on the stick. He is better than me.
Megan putting on some heat in her game yesterday. Not certain why the one below came out sideways. It is right side up on the camera and computer. Sorry.
Proof that Lindsey really was at Sierra and Megan's concert.
Jason, these videos are for you. I videoed one of each of their songs. ENJOY!
5 comments:
You are such a tremendous family. You have strong, amazing kids and the love that you all have for each other is more than evident. I enjoy reading about the daily progress your girls are making--keep it up! Basketball is my favorite sport so keep it up Megan!
Stacy, it took me a while to get it, but nice wordplay ending on a "Note."
Nothing quite like those band concerts...I find the boys like sitting through those almost as all day volleyball tournaments!
Thanks for updating!
Anyday with Art the Clown in it has to be a good day. It's great to see you out doing things TOGETHER! Thank goodness for modern technology and transportation. Stac you are a busy woman AND you are doing an AMAZING job! - Garrity
Great pictures Stacy!! You give new meaning to the phrase "Super Mom"....I'm not sure if it shouldn't be Holy Toledo...or Holy Tornado...don't know how you keep up with all of it!! But Praise God that you do!! Praying for more good news for Lindsey and Sierra and all of the family, and praying for Mom's courage, strength and stamina!!
Hi Jason and Stacy,
I had a little something made for Lindsey and I was wondering where I should send it to as long as that's okay with you. Thank you so much.
Hayley Howell
Post a Comment