Feb 22, Day 8, The chin hair is gone!

This morning in rounds she was reduced to 'floor' status, meaning no more monitors, no more IV's, no more machines, no more nurses following her around, just vitals every 4 hours.  This was a big deal!  So this morning we took her to school, and dropped her off. Felt like dropping off your kid at college. For the first time since June 2012 she just sat there, no monitors, no nurses, no IV pumps, no Berlin, just a couple of bandages and staples in her chest. Pretty neat experience.  At 12:30 she went to physical therapy with her favorite Sandra and Mandi.  After walking 2 flights of stairs (again a first since June) they made mini pizza's and delivered them to Sierra down in the Short Stay.  This was the day we had been dreaming and praying for.  It's been really hard not to get excited about how well she is doing. 

Sierra did well with her plasma pheresis.  Meghan Cleary came by to hang out with Sierra. That was nice of her and they had a good time.

At 1:30 Stacy and I met with Nancy for training. She went through everything we will need to do and watch for when Lindsey is discharged. They are thinking maybe Tuesday or Wednesday for discharging. Yes OUT of the hospital to the RMH.  They kept saying she would do well after transplant, given her good condition going it.  Most everything was the same as Sierra's discharge, but it was a good reminder of what we should be doing and watching for.  Basically, if she sneezes funny, they want to know about it.   We will be doing blood pressures and pulse every 12 hours, meds at various times, and temp once a day.

At 3:00 she was transferred to 3 West.  She was very excited, we were all excited, when the announcement came.  Different room but who cares!  The two main area's of concern that is keeping her even in the hospital are blood pressure and rejection medication adjustments.  Keeping her blood pressure under control is the #1 way to keep the risk of seizures down.  The blood pressure is caused by high levels of steroids and other anti-rejection drugs.

Tonight was the ceremony. You could see a lot of excitement and a bit of sadness as we all said farewell to the symbol of her waiting and enduring. Stacy did 4 cute braids and Lindsey got the job done in the Sobrato Room.  So far, she has been in the hospital for 256 days. Pictures will tell the rest.

Many prayers have been answered in the last 8 days.  Honestly, Stacy and I can not comprehend the overwhelming number of sincere prayers and support in Lindsey's behalf.  We are truly blessed.



You know Stacy loved it!