Feb 25, Monday, Not out yet

Prograf level was way high so they will need a few days to adjust and retest. They want to keep a closer eye on her elevated Prograf with her history of PRES  (the seizures) from Cyclosporine.  Prograf can have the same effect.  Also, she will have biopsy and IVIG on Thursday. So we are looking at Friday at the earliest for her getting out. She has decided she is ready to get out now. Heck with this comfort zone thing, she wants out! Each time Stacy stepped away to tend to other kids or issues, the phone was ringing.  It's like the last week of finals and you just want to leave.  She did stairs and swing in PT today and is continuing to improve.  Sierra had her 3rd treatment today. Did well, but is feeling pretty wiped out.

Lindsey was finally able to catch Dr. Rosenthal for his fingernail painting.  The rule was, she could put 2 coats on one finger and he has to wear it until she goes to the RMH. Maybe that will be incentive for her discharge.  Lindsey also had a fun, quick visit from her little JoJo.  He is 6 and waiting for a kidney transplant.  He was here for dialysis a few months ago and hung out in Lindsey's room a few times.  His dad said he has talked about nothing but wanting to see Lindsey again.  Today they had a check up and JoJo was adamant that they visit Lindsey.  Also, Amanda is finally off isolation and she gets to come hang out with us again. We are super excited about that. She is probably going home on Friday as well.