Thursday, March 31, 2022

Biopsy Results

 Lindsey is doing great.  She had to walk around a lot of Palo Alto yesterday while Gage was getting his biopsy.  She enjoyed lunch with her Paly friends and then hung out at the Stanford mall, then onto shopping in Hillsdale. She didn't "feel" any episodes where she feels her heart rate drop or felt lightheaded with all the walking she did. That is a plus I feel, but that certainly doesn't tell us if we are out of the woods yet or not. Too soon to tell.

It is a little different scenario than we are used to with Covid regulations in place.  Absolutely no siblings are allowed in the hospital and if you are a patient, you have to be in their schedule before they will let you in. Unfortunately, that means that Lindsey could not come into the hospital, nor could she be at the RMH without a parent there (ugghhh). The original biopsy plan was for Lindsey to go and hang out with friends and go to the mall, while Gage and I went in for the biopsy.  His biopsy would be done by 4:30 PM and we would all meet back up at the RMH.  However, we had to improvise and move to plan B.

Last week during our spring break, while I was here with Lindsey, Gage caught a virus.  He spent most of spring break not feeling great, to the point where if he went one more day sick, Jason was going to take him to the ER. This translates to a life flight to California.  Luckily Saturday afternoon he turned a corner and started feeling a little better.  It gave Jason and me peace of mind knowing that he was already scheduled for a biopsy in a couple days. The good news is, his biopsy was a ZERO, no rejection and his coronary arteries look great.  That was a big relief to hear, especially after he has been sick.  However,  his labs showed he was pretty dehydrated and his white blood cell count was low.  These are typical of being sick, but his kidneys are really sensitive, so they admitted him to the hospital for fluids and to check him out a little more. 

We are hoping maybe he will be released tomorrow, but we will see. Lindsey will have clinic tomorrow and then we will fly her home and Gage and I will stay a little longer (maybe until Saturday). I will try and update again after Lindsey's clinic tomorrow.  I know we are definitely in the right place.  These doctors thoroughly check out our kids and I know Gage and Lindsey are getting the best care. Sorry, I have not placed any pictures on these updates, but I am having some technical difficulties that I can't seem to remedy.

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