Lindsey update, Tuesday 1:30pm

What a lousy night!  To help combat the heart block (lack of electrical communication between the top and bottom of heart), they put her on Isoproterenol, an IV drug with rough side affects.  They had tried to use the pacing wires through her neck, but the wires were not connecting to the heart properly.  With the improper placement, she was getting electrical shocks in her abdomine and diaphragm rather than to her heart.  Incredibly painful.  After that unsuccessful try, they went back to the IV drug.

So all night, and I mean ALL NIGHT, she was awake, moaning,  nauseous, vomiting, shaky, highly emotional, not able to rest, and all around miserable.  Very LONG night. Reminded me of the good 'ole '3-chair-combo-days' back in 2012.   Around 7:30 this morning her heart was able to handle a decrease in the IV drug, so they decreased the IV med from .04 to .03. With that small adjustment, she started to perking up.  This morning she still has not eaten and has had to take her rejection meds IV, but is acting much better.

Here's some good news.  Found out she got a ZERO on her biopsy.  NO rejection!! That is great.  So  all this is recovering from an injury, rather than a poor heart heart condition.  I have been impressed Lindsey has taken this a well as she has.

Speaking of good news, we had clinic for all the other kids,  Gage, Megan and Lindsey all had perfect echo's and checkups.  Nothing to report there.  As for Sierra, she got another zero!!  This means all the checkups went as good as possible.  Thank goodness!!

At around 2:00 pm today she will be going into the operating room to have the temporary pacemaker wires more firmly attached to the right ventricle.  They will put her under general anesthetic to place the wires.  With the pacemaker wires properly placed, they can hopefully discontinue the IV drug so she can get some rest tonight.   The hope is she doesn't need the pacing for long, but no one knows how long she will need it. Could be a day, could be a week.  Once she doesn't need the pacing from either the IV or the wires, she will have to be here at least 24 hours to make sure the heart block does not return.

Right now the kids are all playing charades waiting for Lindsey to go in .
So there you go.  You know everything we do.

I will be heading back with the kids today or in the morning.  Stacy will be staying here with Lindsey until she is ready.
later
jas

They just dropped the IV to .02 and doing well!!
   

 Her favorite 'Shannon' from the 'ole days.