Thanksgiving Eve.
We have pulled a fast one. After much planning, preparation,
and coordination with doctors, pilots, life flight, angel flight, and others we
have decided to take Gage home to Oregon for the holiday. Stacy and I are very well aware of the
risk. Calif has explained the serious
risks of stroke and bleeding and would rather have Gage close to LPCH. But
Stacy and I have been surrounded by a kid who has done great for a year now and
feel we can take him home for a few days.
If there was a problem or if a donor heart becomes available, we have local
doctors, a private local pilot and Life Flight available to get him back to
California in about 2-3 hours.
So there you go. This morning Stacy, Gage, Hunter and all of
Gage’s equipment left on an angel flight for Oregon.
Sierra had clinic, echo and blood draw this morning. After the good checkup, we took off in the
suburban for Oregon. Apparently most of the Bay area was also leaving. We were
in heavy stop and go traffic all the way to the Lake Tahoe turnoff. Now we are traveling through the wide open
roads of Nevada.
Back home Gage and Hunter have had a fun filled day so
far. They were met at the Baker City airport
by a host of cousins and have been playing non-stop. We have no major plans for the next few
days, just want to spent time at home with family and friends.
As for the last two weeks, it has been business as usual.
Kids have been in school. I have worked at my office, Stacy has been a busy bee
running the show, and Megan has been living at my brothers, going to school in
North Powder, and playing basketball.
Jenna, the heart failure nurse practitioner, planned a 1 year anniversary party for Gage. It was held in the Sobrato Room on 3 West. It was great to see nurses, doctors, school teachers, social workers, patients, and others make an effort to come and support Gage in his wait for a heart. It's kind of a big deal, he is the youngest and longest patient to be on this devise. They celebrated with dill pickles, cookies and ice cream.
We will report back after the weekend.
Thanksgiving day. We made it here at 11:30 pm. It is always a long trip no matter how you break it up. It is soooo good to be here. We have enjoyed a traditional Thanksgiving with a morning run, playing basketball, feeding cows, eating until it hurts, and now relaxing. Our favorite part of being home is all sitting together at the table for a meal. Very nice. Honestly, words can not express how nice it is and how grateful we are to be home all together.
We have checked in with Jenna, Gage's nurse practitioner, several times to let her know how Gage is doing. So far, so good. We just need to call to come to really get things hopping around here.
Till next time
Jason
Gage's one year anniversary party pictures
Crazy hair day at Nixon School
Stacy and I on our run this morning
Gage's party invite.
More crazy pictures from the RMH
Posts
6 comments:
Great to see you all home. Blessing
Good for you! Iʻm so glad to hear you went home to be with family and live a little "normally" for a few days. Itʻs so important to remember what you have to look forward to when he gets his heart. Happy thanksgiving! Prayers and blessings for continued health for all.
Your family's experience is unreal with everything that has went on!! My prayers are with all of u, and the strength that u all have had to have is amazing and inspiring!! Prayers all the way from PA.
Couple things
That is the best Balloon art I think I've seen.
It is so nice to see you all at home together.
Love seeing Gage eat a pickle!
I can't believe how big the kids all are now. I was trying to see If you have a gofundme page. I really hope so, if you do please post so we can all share and give. Your family is precious to us all.
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