Jason and Stacy Clan: Aug 23, Little Gage update

Due for an update for our family. The summer has been cruising by. Over the last 3 weeks nothing major has happened. We have been involved in haying, working, and raising kids.
Just to put our lives in perspective, a few weeks ago we drove to Parma to visit Stephanie and Kade Thomas. They are our good friends we met in Calif two years ago who had a daughter born with a half a heart. Tristin had a pretty rough year, and now she is going on the transplant list. They will be leaving their nice Homedale home, and living in an apartment in Palo Alto area as Tristin is placed on the transplant list. Needless to say, we had much to visit about as they prepare for the 'wait'. They have a huge challenge in front of them as they care for Tristin, raise Wyatt (their 5 year old), Kade keeps his job in Idaho, and stay together as a family. We have a lot of respect for them.  So when we start complaining about anything, we just have to remind ourselves about the Thomas's.

Kids have all been doing very well. Each night Stacy and I are grateful for this time we have to be in Oregon together as a family. Nothing to report on Sierra and Lindsey, they take their meds and act pretty normal. They both have biopsies in September. As for Gage, he had a pacemaker check the other day. We are able to transport data from the pacemaker over the phone lines to Calif. We do this test every 3 months, and this time they called us back with some results. To our surprise, according to the pacemaker 'memory', Gage had 3 runs of V-Tack between May and July. It also showed increased fluid retention. So they were wondering if he has been acting strange, getting puffy, or passing out. Good grief NO! He looks and acts great. If we had any concerns with Gage, they would have been the FIRST to know. Anyway, after that test, we had a echo done on our little guy. It showed a slight increase in fluid retention and a small increase in the size of his left ventricle (both not good). This is all a blunt reminder of the heart disease he has. Many times I hope we are done with all this, but we are not. There will always be something to watch and worry about. Worrying doesn't do any good, so.... they take their meds, we watch their activity, and, as I said, we are grateful for this time we have to be together here in Oregon.   Now we are waiting to hear what Calif wants us to do. His next scheduled checkup will be in November, but now they may want to see him in September with Sierra and Lindsey.  It's easy to say, but hard to execute '...highs to high, or the lows to low'.