Wednesday, July 10, 2013

July 10, Scheduled Maintenance

Time for some 'scheduled maintenance'. Sierra has her monthly IVIG to fight against the antibody rejection, and Lindsey has her monthly biopsy, echo, and clinic. It is 11:00 am and Lindsey just went in. She is once again doing the biopsy awake (biopsy brave). It was HER decision. She wanted to be here in the Short Stay Unit with Sierra rather than down in the surgery center for recovery. We were all excited to come to the hospital this morning.  Feels like coming 'home' in a sense. These people and this place had such an impact in our lives it is good to see them again. When we walked in this morning we was Jen, Riza, and Mark, some of her favorite night nurses. We saw Dr. Yeh (from CVICU) and Dr. Katz Meada (the surgeon) briefly, and will be swinging up through 3 West to see the rest of the gang later on.

Yesterday we had a nice flight here.  Dale Smith, a very nice Angel Flight pilot, flew us here in his  comfortable plane.  As is the case with all the Angel Flight pilots, it was very kind of him. We are staying with the Zengers but will be here with Sierra until at least 10 pm tonight.

Check in later as the biopsy, echo, and blood test results are known.

12 noon. Lindsey is back from biopsy. Heart pressures looked perfect, exactly where they want them. Tomorrow we will get the rejection results. Big story is her emotions. She does well on the biopsy awake but get scared and starts crying towards the end. She can be so hard on herself. As you know, she likes to know what is going on, but then get scared as it continues. The Doctors praise her for doing it awake and said she did well.

2:00 pm. Just watched Jake and Wendy's calves sale on the video action out of Reno. Calves did well, sold for a good price. They will be delivered in late October. 

Echo's are done on both Sierra and Lindsey. Lindsey is good to go. Sierra still has another 7 hours (ugh). Lindsey's friend, Jolena, came by for a visit. They traveled here from San Jose just to visit. Liz came by for a visit, and now we have Sandra here doing Sierra and Lindsey's nails.

 Dale Smith showing the kids the flight plan

 Riza, Jen, and Mark.  All good night nurses who took care of Lindsey many times.
 Dina and her mother from Hawaii. They are also here for scheduled maintenance. Dina and Lindsey waited during the same time period. Lindsey used to walk to the CVICU to visit.

 Big sister getting poked....
 Then little sister getting poked.
 Sharing the same room until.....
Lindsey heads off to biopsy, awake.   Remember to the 'Biopsy Brave'!
Highly specialized intelligent nurses in the 'Short Stay' Unit.
 

4 comments:

Unknown said...

Thanks so much for keeping us updated. hugs to the family.

Dean and Dawnie said...

I love the "biopsy brave"...your darling daughters are amazing...and BRAVE! Glad things are so wonderful for you all. It is fun to see how the experiences of the past have turned to be blessings today for you and others. Hugs to your kidos!
Enjoy good ole Eastern Oregon it holds a very special part in our lives too.

Anonymous said...

i have a question for Jason and Stacey. At what point were you able to accept all of the procedures and hospitals and doctors as "normal"? My son was born with a congenital heart defect and is 2 years old. He has beaten the odds and still has not needed surgery. My heart still feels heavy when I have to take him to the cardiologist, because "it's not what normal kids have to do". I feel awkward in a sense getting lasix filled every month for a 2 year old. Just a couple days ago he had to have an MRI to determine if he needs surgery. they had to put him under for the procedure. Although, that's all that happened it was still very emotionally draining taking him there, seeing him go to sleep, knowing where he was, and why he was there. It's been 2 years now and it's not any easier for me yet. Thank you for your time and sharing your story.
L from Ohio.

Unknown said...
This comment has been removed by the author.