On Friday we did meet with her teacher Kevin for his one and only 'Parent-Teacher' conference. She is doing good with her school work. Focusing mostly on reading comprehension. There are 2-3 other kids in her class, but none of them are regulars and some of them come and go. She is the only one that has been there from the beginning of the school year.
Talked to the doctors more about the transplant process. Guess there are 12-13 kids on the LPCH transplant list. We only know about a third of the them. Lindsey is the only one with her size, blood type 'O', and antibody issues. So its more of a matching process than a list, because of the uniqueness of the donor needed.
We met a 16 year only who has DCM (same as Lindsey) since she was 2 years old. She had made it this long but was now on the 'Heart Mate' (the Berlin for older larger patients). She wants to meet Sierra and ask a bunch of questions.
Today, Sunday, there was a social at the Steven's place. Really nice family. We didn't realize there were so many new people in the ward. There are about 10-15 new young couples who have moved in in the last couple of months. Shoot, we have been here for 5 months, so we felt like old timers (not really)!
I was impressed with Lindsey today. She felt good enough to let both Stacy and I stay for the entire Sunday service. Usually we only go for the 1st hour then one of us comes back, but today she was okay with us staying. It helped that John (Chloe's dad) played games with her. Thanks John.
Tonight, John and Shelly made strawberry shortcake for all of us in the Sabrato Room. It was sooo good.
Saturday morning at the LPCH fountain.
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3 comments:
Sounds like the quiet relaxing weekend that was needed for your brains and bodies, so they could catch up after the busy, busy last couple of weeks you've had (however it may have made the days feel longer, right!?!). It's so great to hear that everyone is doing so well, but it's really nice to know that Lindsey's spirits are up, too....that is very important! :) PV girls and boys are off to state playoff games this upcoming Friday, pretty exciting to have both going....go PV!! Love and miss you each...loves, hugs, and many prayers xoxoxoxo
p.s. when will basketball season start? What new activities are the kiddos going to jump into to help with keeping that schedule, so BUSY?! :)
YEAH!! for boring days. I am glad to hear "All Is Well"
I love how Gage is often doing something in the photos and videos. This time he has got a game or book in his hands that is a lot more interesting than looking at the camera! Glad there is not much to report. No news seems to be good news most of the time.
Josh
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