I can't believe it has almost been 2 months since our last post. Time is moving much faster than it was last year at this time. Our crazy couple months is coming to a close as basketball season is ending. Sierra participated in high school dance, Megan plays point guard on varsity basketball, Lindsey AAU volleyball, Jason coached Hunter in YMCA basketball and Gage played YMCA basketball with all his buddies. Not to mention skiing on Fridays and tax season for dear ole Uncle Jason. BUT, before we get into the details of our activities, I will update you on the 3 heart kids.
Lindsey and Gage went for biopsies in the middle of January. Both received ZERO's and great check ups. Gage will return in April for his annual check up on the 3rd. I am having a hard time comprehending that it has been a year already. We are continuing to s-l-o-w-l-y wean him off of his prednisone. He will be off by the time he has his biopsy in April. He will also be finished with about 6 different meds he is currently taking, this will cut his load in more than half. He is very excited to be done.
Lindsey will return in July and then will probably only have to go yearly after that. Sierra went for biopsy in February and also received a ZERO. Her check up went well and there were no changes made for her either. We talked a lot with the team about Sierra taking on more responsibilities, as she is heading off to college in the fall, and what that entails exactly. Sierra wasn't exactly thrilled with the conversation, she does NOT want to have to grow up. Sierra returns in July as well for her biopsy. We feel very blessed to have, what appears to be, a chance to take a deep breath. Now on to the everyday stuff.
Sierra has really enjoyed doing dance this year and has nailed all of her dances. She has been very committed and brings fun and energy to the dance team. She is back in band playing the saxophone, which she really enjoys. She learned how to snowboard for the first time this year, and by the 6th time, was looking pretty good on it.
Megan is heading to the state playoffs this week. She is very dedicated and is shocked every time a shot does NOT go in. We are really proud of her hard work and focus. Her first game will be Wednesday with the championship game on Saturday. She has improved so much this year. It has been so nice to be here and attend all of her games. I certainly don't take that for granted and treasure every moment.
Lindsey improved with skiing this year and no longer desires to ski with her family (bummer). She now ski's with her friends and especially friends she has particular interest in of the male gender. She is practicing with AAU volleyball and has her first tournament this Saturday. Between volleyball, skiing and her constantly changing middle school social life, she is happy and doing well.
Hunter really enjoyed his dad coaching his YMCA basketball team. Jason did an awesome job with 9 boys in 5-6th grades. Some didn't have a lot of natural ability or knowledge of the game and some did very well. By the last game, they were really looking like a great team. Hunter enjoyed skiing as well and went with his friends that wanted to go off jumps and difficult runs. I was fine that he didn't want to ski with me, as I do not enjoy jump runs. He is looking forward to participating in middle school track and enjoys challenging himself in school and PE.
Gage had so much fun playing YMCA basketball with his cousins. He really got into it and would help coach when it was his turn to sit out of the game. He was really funny to watch. He would have a hustle play after the ball, fall, roll then jump up and get back on defense without missing a beat. He was really proud of the one basket he made this season. He did great. Gage skied for the first time this year. He was really frustrated his first day, but quickly caught on the rest of his lesson sessions and had his teacher in awe.
Jason is in the full thick of tax season. He still amazes me with his caring ability to put his work to the side for his family. With all the stress he has on him, he still finds time to coach Hunter's YMCA team, attend all of Megan's games and leave the office if needed to help get kids to where they need to go. I am a very lucky lady!
I am back to working as the school nurse 1/2 day/week, working night shift at the hospital in OB and coaching Sierra's dance team. Along with making sure all the family activity coordinating is done. I am currently the Relief Society President in our church. I have the opportunity to look out for the needs of the women in our ward. What a great calling it is for me, as our Heavenly Father has given me the opportunity to help the wonderful people who have done so much for our family.
So, as you can see, we have been very busy. We have enjoyed having our trips for biopsies to catch up with our California friends. However, not a day goes by that we don't stop and take in the fact we are home and together. We cherish this busy schedule, because we can do it, and this period of our life won't last forever.
Wednesday, February 28, 2018
Sunday, January 7, 2018
January 7 2018
Happy New Year.
Good grief! Where has the time gone. We went from counting each day to counting months. That's a good thing. December was about as 'normal' as it could have been. Between Christmas concerts, Megan and Hunter's basketball, school, dance, boy scout camp outs, work, and the buzz of the holiday it was and still is good to be home. I can still say after being home for over 6 months now (yes it has only been 6 months) it is good to be home. We still don't take it for granite.
In January, we finally go back to Calif for checkups. Not sure when, next week I think. This time it is only 2 of the 3 going, Lindsey and Gage are up to bat, Sierra has the month off. All we know is the kids keep taking their meds, and every 3-4 weeks Stacy draws blood. Their doses have changes slightly, but all is going well there. Gage's predisone is down to a very low level. The swelling in is face is almost all gone. If you compare pictures back in June until now you can see quite a change.
Other than that, we have enjoyed a relatively 'normal' Christmas season. Stacy is teaching dance to the the high school girls (including Sierra), Megan is loving basketball, they are currently 12-1 and lookin' for more. Lindsey is all over the junior high social seen. I am coaching Hunter in YMCA basketball. Gage Aurelius still thinks he is a comedian! He is playing YMCA with a bunch of his cousins and buddies. Of course there is the normal stress and struggles we all go through, but we are taking it in stride.
Very low snow this year. Last year we had 1-3 ft of snow in our yard. This year we have 1-3 inches. Hopefully we get more in the mountains for the upcoming irrigation season.
That's really all I got. If I am missing something, I sure can't think of it. Even though we do not talk about it much, deep down Stacy and I both agree that this is borrowed time. The health of 3 heart transplant kids can't last forever. So we will continue to enjoy the life we have and not dwell on what might or could or may happen.
After considering the show and what we have experienced in California, we came across a quote in our CPA literature. We thought this was very appropriate given the friends and life changing experiences we had. Not saying we won't return just not yet.
All changes, even the most longed for, have there melancholy; for what we leave behind us is a part of ourselves. Anatole France
Each Christmas eve we do a 'traditional' tubing up at Little Alps. We had over 42 people there including cousins, aunts, uncles, and friends. We tried to leave all the 'responsible' adults home.
Good grief! Where has the time gone. We went from counting each day to counting months. That's a good thing. December was about as 'normal' as it could have been. Between Christmas concerts, Megan and Hunter's basketball, school, dance, boy scout camp outs, work, and the buzz of the holiday it was and still is good to be home. I can still say after being home for over 6 months now (yes it has only been 6 months) it is good to be home. We still don't take it for granite.
In January, we finally go back to Calif for checkups. Not sure when, next week I think. This time it is only 2 of the 3 going, Lindsey and Gage are up to bat, Sierra has the month off. All we know is the kids keep taking their meds, and every 3-4 weeks Stacy draws blood. Their doses have changes slightly, but all is going well there. Gage's predisone is down to a very low level. The swelling in is face is almost all gone. If you compare pictures back in June until now you can see quite a change.
Other than that, we have enjoyed a relatively 'normal' Christmas season. Stacy is teaching dance to the the high school girls (including Sierra), Megan is loving basketball, they are currently 12-1 and lookin' for more. Lindsey is all over the junior high social seen. I am coaching Hunter in YMCA basketball. Gage Aurelius still thinks he is a comedian! He is playing YMCA with a bunch of his cousins and buddies. Of course there is the normal stress and struggles we all go through, but we are taking it in stride.
Very low snow this year. Last year we had 1-3 ft of snow in our yard. This year we have 1-3 inches. Hopefully we get more in the mountains for the upcoming irrigation season.
That's really all I got. If I am missing something, I sure can't think of it. Even though we do not talk about it much, deep down Stacy and I both agree that this is borrowed time. The health of 3 heart transplant kids can't last forever. So we will continue to enjoy the life we have and not dwell on what might or could or may happen.
After considering the show and what we have experienced in California, we came across a quote in our CPA literature. We thought this was very appropriate given the friends and life changing experiences we had. Not saying we won't return just not yet.
All changes, even the most longed for, have there melancholy; for what we leave behind us is a part of ourselves. Anatole France
Yah, that's the 'Man-of-Steel'
Hunter was eating it up!!
Lindey's 14 birthday.
Ole college buddy Wade Tishner. Super funny guy to hang out with.
Lindsey and the junior high dance team.
Our glorious Christmas tree. Megan had the honors of the star.
This was Nick and Hilary Cox's house a month ago. A horrible chimney fire destroyed their home.
My Dad and Uncle Allen. Dad was laughing at a story Allen was telling him. It was a fun picture to capture.
This is the infamous Powder Valley gym.... Christmas concert style!
Lindsey, Abby, and Ayla makin' it happen.
Sunday, November 26, 2017
The Show, Heartbreak
What a nice Thanksgiving weekend. We had my entire extended family here for the holiday, 33 in total. We played basketball, cut and split our firewood, did a few ranch projects, shot shotguns, ate until it hurt, and watched the MSNBC Heartbreak .
We we all nervous to watch the show. With all the interviews we went through over the years, we didn't know how it would come out. We were pleasantly surprised at the results. We thought the show was done incredibly well. Sandy Cummings did a great job putting it all together. She was able to bring out some of the untold struggles we had. I am still not sure why someone didn't tell me about my hair as the doctor was reporting on Gage's transplant.!?!? Anyway... it was neat to reflect on the donor family, the doctors and nurses that helped our kids, and the good friends we still have in Calif and here in Oregon. There were times of laughter and plenty of tears. Some of the toughest memories were those when we had 2 heart issues going on at the same time. In those moments, it was hard to keep it all together. It is good to have that part of our life behind us. Thanks Sandy, for all you did. It will be fun to show this to our kids and even grand kids years down the road.
We continue to make trips to Calif for checkups, tests, and med adjustments. Our next planned trip is in January. Someday, hopefully deep into the future, the hammer will fall and we will have to return to Calif due to a complication......but not yet. We try not to think about that, it doesn't do any good. For now, we are happy to all be home and treasure the time here.
We we all nervous to watch the show. With all the interviews we went through over the years, we didn't know how it would come out. We were pleasantly surprised at the results. We thought the show was done incredibly well. Sandy Cummings did a great job putting it all together. She was able to bring out some of the untold struggles we had. I am still not sure why someone didn't tell me about my hair as the doctor was reporting on Gage's transplant.!?!? Anyway... it was neat to reflect on the donor family, the doctors and nurses that helped our kids, and the good friends we still have in Calif and here in Oregon. There were times of laughter and plenty of tears. Some of the toughest memories were those when we had 2 heart issues going on at the same time. In those moments, it was hard to keep it all together. It is good to have that part of our life behind us. Thanks Sandy, for all you did. It will be fun to show this to our kids and even grand kids years down the road.
We continue to make trips to Calif for checkups, tests, and med adjustments. Our next planned trip is in January. Someday, hopefully deep into the future, the hammer will fall and we will have to return to Calif due to a complication......but not yet. We try not to think about that, it doesn't do any good. For now, we are happy to all be home and treasure the time here.
The cousins
Aunts, Uncles and Mom and Dad
The show audience
Throw in a little Thanksgiving dinner
And shotgun shooting
The Cultural Celebration in Boise
Wrap in up with a little BBall on Thanksgiving morning.
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